My MS Journal

This is MY journey with MS! I give you my thoughts, feelings, hopes, and prayers. My wish that one day this disease will come to an end. That one day there will be a cure. For now, I hold on to possibility. I HOPE this will help and inspire not only myself but others.

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Hospital....Home Again

Mar 6, 2010 8:55am

I just got home yesterday from Seattle. I have been in the hospital for more than 2 weeks and was more than ready to come home, so I thought. I am still really having a hard time and I don't know what the heck is going on. ...

6 Years with MS

Feb 13, 2010 5:52pm

Where has the time gone? Today is the 6 year anniversary of my MS and what a 6 years it has been. Lots of ups and downs, LOTS of changes....some good, some bad. I'm sure you all understand just what I mean as this illness of ours...

Can't Go Anywhere!

Feb 9, 2010 10:40pm

First off I would like to say Thanks for all the well wishes. I did have a touch of pneumonia and spent 3 days in the hospital but I am much better now. I am really happy to report that I bounced back much quicker than I normally...

First Infection....

Jan 25, 2010 9:52pm

Hi everyone! I'm writing to you from my blackberry at Kadlec Medical Center ICU. So I'm not really an ICU patient, they classify me as Intermediate Care but there were no beds available there so this is where I was placed. Anyway, I was admitted yesterday and...

2010! Looking forward to a New Year!!!!

Jan 13, 2010 11:32pm

Hi everyone! I can't believe it is already the 13th of January. It has been almost a month since I last posted (as my father pointed out this evening). I hope you all had a wonderful Christmas and New Year's filled with lots of love and happiness....

Day 90 - 3 Months Post-Transplant!

Dec 20, 2009 10:33am

Day 90! WHOO HOO! I almost can't believe my 3 month mark is already here. What a crazy 3 months it has been too. So many changes.....some good, some bad, most difficult. Today is the milestone where they say I can now eat some of...

Probably Not MS! :)

Dec 15, 2009 11:39pm

So my symptoms are probably not actually MS. It turned out my legs were quite swollen and that was actually related to the lovely blood clot I have currently. Did I mention my blood clot before? I'm pretty sure I mentioned it in an earlier post. ...

MS Symptoms....Urg

Dec 12, 2009 10:55pm

It was bound to happen....some of my MS symptoms have returned. They are not as bad as before but still they are here. Basically tonight I have had some numbness in my lower legs and feet. Of course I was hoping this would not happen but the...

Quick Update

Dec 11, 2009 11:10am

Hello! I hope this finds each and every one of you doing well. I don't have a lot of time right now, so I will be back soon to give you a more detailed update of how things have been doing. For now here's a quick update....

CMV, PICC line & More

Nov 30, 2009 4:06pm

The last couple of weeks have been a bit rocky to say the least. Last week especially. I typically get my weekly labs done on Tuesdays. They run a CMV, EBV, CMP, and CBC each week to watch my blood counts and make sure that I am...

Resting

Nov 19, 2009 1:57pm

Sorry that it has been a little while since I last posted. I have been extremely tired lately. I was told that the less steroids you are on the more fatigue you can experience and so I am guessing that is what is happening with me right now....

I'm Home! :)

Nov 9, 2009 12:59pm

I am happy to report that I am home! I had my MRI and last appointments on Friday then hit the road. It was pretty late when we got home and I was tired on Saturday, most likely from the traveling. I unpacked a few of the...

Hair Loss, Nausea.....fun times with chemo.

Oct 29, 2009 6:44pm

The other day I decided to try out one of my wigs. It was the first time that I actually wore one and I have to say it wasn't too bad. You see, I haven't really felt like wearing one because well, I thought they would be uncomfortable...

Getting Ready to Go HOME!!! :)

Oct 28, 2009 6:45pm

That's right, I get to go home soon and I almost can't wait. It will be SO nice to be back at home, in my own home, own bed, with my own things. Not to mention to be around my whole family....no longer needing my family to come...

Day 32!

Oct 23, 2009 3:26pm

I have officially made it past the one month mark! WHOO HOO!!!! For the most part things are going really well. I had a couple bad days this week but I'm blaming the steroids for that. I don't really know if it was the steroids, but...

The Good, the Bad, the Ugly.....a look back at transplant! (sorry, this is a LONG one)

Oct 19, 2009 7:19pm

Today is day 28 post-transplant and things are going pretty well. They are even talking about sending me home soon. That will be nice. I'm a little nervous of course, but they think I'm pretty much ready. I think it's important for anyone who is looking...

Day 23.....tapering off steroids! YAY!!!

Oct 14, 2009 3:56pm

So it has been a few days since I last updated. Sorry about that. For the most part things are going well. The weekend was relatively mild. For the last week or so I have been on IV Fluids, which I think helped me a lot....

Day 19

Oct 10, 2009 8:51pm

Today is my Day 19 and with each day I am feeling better and better. I can't tell you how relieved I am to be starting to feel better. For a little while there I just was so anxious......I would be too weak to really do anything only...

Day 16

Oct 7, 2009 11:10am

Hi everyone! I know it has been a long time since I have updated my blog. Thankfully my mom was able to do some updates while I was in the hospital. So, here's the scoop. I spent 20 days in the hospital, most of which is...

TWO STEPS FORWARD ONE STEP BACK - DAYS 9 AND 10

Oct 1, 2009 2:12pm

This is Judy. Jaime had a wonderful day yesterday. She was up and showered by 6:00 a.m. and ready to order some food. We took a couple of laps around the hallways and she was feeling great. Her blood counts are going up she was at...

DAY 7 - GI JANE DAY

Sep 28, 2009 10:10am

This is Judy again. Today is day +7. We are anxiously awaiting the day +14. Seven more days of this to go and then the numbers should start to come in. Well, Jaime has shaved her head. Looks kinda cute if I do say so...

DAYS 3 - 6

Sep 27, 2009 11:48am

This is Jaime's Mom and I am going to give you a short update on the progress of the transplant. We are officially at day +6. Jaime continues to expereince the side effects of the chemo. She is really sick and the doctors and nurses expect this...

DAYS 1 & 2

Sep 23, 2009 3:51pm

This is Jaime's Mom again. The last two days have been really rough. Jaime is experiencing the effects of the chemotherapy. Her throat is very raw and it hurts to swollow and she is having a hard time talking (if any of you know Jaime, at all,...

DAY ZERO - LIFTOFF

Sep 21, 2009 7:51pm

This is Judy again. Today Jaime had her transplant. What a cool experience! The nurse told her today to think of this as her birthday. After day zero you start counting from one forward. Here is how this works: between day one and day five the numbers will continue to...

Day -1

Sep 20, 2009 10:12am

My name is Judy and I am Jaime's Mom and I am updating her blog because she is saving all her strength to get to day Zero for transplant! So far Jaime is responding much better than anticipated. The side effects have been less than we thought. Yesterday Jaime had...