My Life with Fibro: The Fresh Face of Fibromyalgia on the Web

An online haven for people with fibromyalgia. We bring fibrofolks together and encourage members to learn from each other as the My Life with Fibro community strives to raise awareness and raise morale.

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Fibromyalgia, Mornings, and Pain: Don’t Give In

Mar 7, 2010 1:16pm

Recently I’ve realized something I may have already known, but it’s struck me so profoundly I thought I ought to pass it on. I dread mornings. I wake up with an upset stomach, a headache, and body that hurts so badly I can barely move. Every morning. It is a rare...

Kate Update: January 6, Mayo Clinic, Medicine

Feb 23, 2010 4:56pm

January 6, 2010 As today goes on, and people continue to contact me for updates, I am remembering more about yesterday's appointment. But first, a funny story: Yesterday morning Sus and I got up and got ready for the day. We knew I had an appointment at 11 and were planning to...

Kate Update: January 5, Mayo Clinic, Day One

Feb 7, 2010 10:01am

January 5, 2010 Today was my first day at Mayo. It went well. I have an unusual doctor, with a "bedside" manner unlike anything I have experienced previously. Despite his odd behavior, my doctor seems to really know his stuff. He has me on a new five-part regimen which consists of...

Kate Update: January 4, Arizona, Mayo Clinic

Feb 3, 2010 9:34am

I've pondered how best to relate the events of the last month, and have decided to be most open and share the notes I wrote for myself , while in Arizona. These will read a bit more like a journal than you may be accustomed to, but I make no...

Kate Update: What is Possible and Getting Lost

Jan 23, 2010 7:55am

Those who love me don't understand why I have not written. In fact, I do not understand why I have not written. They remind me I committed to tell you about the health issues I face, so we may create a positive and fresh community of folks who strengthen each...

Kate Update: Please Forgive Me

Jan 14, 2010 9:31pm

I know I should have something to say. I know that you all understand me more than most. I know I owe something to all the wonderful people who have had me in their prayers over the past three months. I really do. In fact, I think I will spend the entire...

Kate Update: In Third Person

Dec 21, 2009 10:51pm

Kate is spent. She is enjoying the Christmas season immensely. She is having a rough month. She is smart enough to know the previous two statements can both be true. She is fighting brain aches, and dizziness, and for control of her appendages. She is waiting to go to Mayo. (And is quite...

Is it just me? My Life with: Postural Orthostatic Tachycardia), Part 2

Nov 22, 2009 7:59pm

2009 It was just a little dizziness. Or maybe I was just lightheaded. But it wouldn't go away. Maybe it was my ear infection (I've had two this year, what's with that?!), or the medication for the ear infection. But after a week, I'd had enough. My doctor was quick to...

Is it just me? My Life with Postural Orthostatic Tachycardia

Nov 17, 2009 7:29pm

1985 When I was six months old I began to throw up and continued to do so until I became non-responsive. I was dehydrated. They admitted me to the hospital and said I'd be out in 24 hours... when my heart rate came back down. It never really did, so they...

Is it just me? Forgetting Just How Bad the Pain Can Be

Nov 8, 2009 7:10am

Sometimes, even after over a decade with fibromyalgia, I have to be reminded just how bad things can get. Sometimes, I forget how everything can hurt. Sometimes, I am surprised by how quickly the pain flares up. Sometimes, I am pleasantly surprised by how quickly the pain fades away. Today is...