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Top Fibromyalgia Blogs
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Use Natural and Alternative Help for Fibromyalgia
Use Natural and Alternative Help for Fibromyalgia....
Ok, that’s a stretch, in order to stay on the Strange(r) topic for NaBloPoMo, because I think...
Daffodils, Pink Polish and Methotrexate
March 8, 2010 was the first day that I did not wear my heavy, dirty, dark brown Northface jacket in...
Why My Yarn Looks Like My Yarn
Notice the ties. You may have noticed that my yarn in my photos does not look as neat as others yarn...
I am so sorry I have been not reading and updating you guys. Life got in the way, which made me too...
Blue Ribbon Physio on the radio!
Blue Ribbon Physiotherapy will soon be on radio and you can hear online! We are starting a new radio...
Fibromyalgia Haven
Are you AWARE of one of the best resources for Fibromyalgia information on the web? The National Fibromyalgia Association is the leading non-profit organization dedicated to improving quality of life for people with Fibromyalgia. Their website has been a great resource for me as an FM patient, advocate, and support group...
I Have Changed. I am Different. I am Improved.
I was invited by my friend Kathy over at The Fibrochondriac to participate in her blog carnival. The theme of her carnival is: What do you want people to know about you? I was surfing around through my old posts, looking for an appropriate one to share, and I came across...
There is a lot of Fibromyalgia information on the web. In the same day – same hour really – you can read seven “expert” and yet conflicting articles. One blog (maybe mine) will tell you to try yoga, while the next will tell you to avoid all types of exercise....
When I thought about what my first post in over a month should be, I could only think about how difficult it has been to balance my new professional career with my on going FibroHaven responsibilities. First let me start by saying I am thrilled to be working again. Thrilled that...
What is Your Voice Telling You?
I was standing in my favorite Starbucks last week. My mood was heavy and pensive – wondering about my current path and recent choices, lamenting my time away from FibroHaven – and then I read this on the cover of a beautiful book of quotations: Throughout your life there’s a voice...
What did you do? I’ve been asked this question a lot since returning to work. What did you do before this? It is an interesting question and I don’t think I have decided how to answer it yet. Do I tell them about the accident that brought my life to a screeching hault? Do...
FightingFatigue.org
The Vicious Cycle of Exercise with ME/CFS & Fibromyalgia
I joined a local gym back in December because I felt that maybe, just maybe, THIS time I could figure out how to exercise properly without it causing a CFS flare. All we ever hear is that CFS and Fibromyalgia patients need exercise in order to keep from deconditioning but...
The IC Network Introduces “The Bladder Academy”
The IC Network is starting a series of classes and workshops called “The Bladder Academy”. The purpose of these classes and workshops is to help IC patients learn more about the disease, treatment options, self-help strategies and other pertinent information. The monthly web classes, with phone-in options, are a great...
Day of Invisibility – Please Watch Video & Spread the Word!
June 6th is the Day of Visiblity for invisible chronic illnesses. Please watch the video, visit the Invisible Diseases website, make or download cards, and do your part to help! If everyone of us suffering from chronic illness would commit to sending just 5 postcards to people they know, sharing...
Part 2 – Risk Factors for Fibromyalgia In Children
In part 1 of this 2-part series, I went over Dr. Pellegrino’s article on Fibromyalgia in children. The first post covered risk factors, causes of FM in children and common initial symptoms. If you didn’t have a chance to read part 1, please read Part 1 – Risk Factors for...
Part 1 – Risk Factors for Fibromyalgia In Children
It’s bad enough as adults to be burdened with an illness like Fibromyalgia but it is even more of a shame when a child has it. We don’t hear a lot about Fibromyalgia in children or the risk factors for our kids. I worry all of the time that Logan...
20 Years and ME/CFS Is Still Hard To Adjust To
The past 2 to 3 weeks have been extremely difficult as I fight another ME/CFS flare. Everytime I have a bad flare, I feel like I did when I first got sick. I’m scared, frustrated, angry, confused, depressed and feeling so sick I don’t think I can go on. To...
About.com Fibromyalgia & Chronic Fatigue Syndrome
Impaired Language in Fibromyalgia & Chronic Fatigue Syndrome
Blog Classic: Feb. 3, 2009 How often do you find yourself searching your brain for a simple word that you just can't remember? Do you have problems writing, or understanding things you read or hear? If so, you're certainly not alone! This kind of language impairment is a...
Protecting Your Liver With Fibromyalgia & Chronic Fatigue Syndrome
Did you know one of the hazards of fibromyalgia and chronic fatigue syndrome is liver damage? These conditions don't directly attack your liver, but the medications we take can do a lot of damage. Anti-inflammatories (NSAIDs) and narcotics, especially those containing acetaminophen (such as Vicodin), send a constant stream of...
Fibromyalgia & Mandatory Exercise
I know I need regular exercise, but even before I had fibromyalgia I wasn't good about it. The only times in my life I've been consistent have been when the exercise was mandatory, like when it was a high school or college class, or when I had to walk...
Alternative Treatments for Fibromyalgia & Chronic Fatigue Syndrome
When conventional medicine fails -- as it often does for fibromyalgia and chronic fatigue syndrome -- you have to start looking at what else is out there. When you're trying to learn about complementary/alternative medicine, known as CAM, it's tough. Which information is reliable? Which studies are...
New Drug-Control Policy Could Benefit Fibromyalgia Patients
Could we soon be leaving behind the assumption that anyone wanting opiate painkillers is or could soon be an addict? President Obama's new director and deputy director of the White House Office of National Drug Control Policy (ONDCP) and are saying some things that make me optimistic. The director is...
Doing Housework With Fibromyalgia & Chronic Fatigue Syndrome
Ah, housework -- that constant nagging bundle of stuff we all need to take care of, at one point or another! Fibromyalgia and chronic fatigue syndrome make sure that we don't have the energy to keep up on it, and that when we finally get around to it, it's...
The Fibromyalgia Experiment
Do the Top Earners Hurt More than They Help?
This is something that I’ve really been pondering a lot lately because I’m a member of several residual income article sites. I’ve noticed a trend at almost all of them. At first there are a few people who are really dedicated when the site is still growing and write a...
I really fell in love with a TV special Michael J. Fox did about optimism when his book first came out. It’s like he always lives on Disney vacations where everything is beautiful, that’s just his personality. I am naturally sarcastic, but I want to be that way. He really...
I used to keep a blog that was just for my day to day fibromyalgia life. This blog focuses more on my work. I really wanted an opportunity to document my pain levels and how they correspond to stress as well as my fitness routine. It might be helpful to...
The Most Heart Stopping Moment In Blogging
All bloggers have experienced that sickening feeling when you go to your blog and it’s no longer there. In my case it’s usually that my host is just down for a few minutes. However, even though I’ve been doing this for a number of years and I have a back...
I think that my venture into voice recognition software has really started qualifying as an experiment. I really find it a lot more enjoyable and easier than typing with my fibromyalgia. However, it is really an adventure. Over time the software has really come to recognize my voice and speech...
I’ve written about this before but it’s easily the thing that affects my fibromyalgia the worst. I know that I need to remain calm and peaceful and keep my life at a manageable level. This allows me to sleep, feel a decrease in pain and generally be happier. It’s the...
My Life with Fibro: The Fresh Face of Fibromyalgia on the Web
Fibromyalgia, Mornings, and Pain: Don’t Give In
Recently I’ve realized something I may have already known, but it’s struck me so profoundly I thought I ought to pass it on. I dread mornings. I wake up with an upset stomach, a headache, and body that hurts so badly I can barely move. Every morning. It is a rare...
Kate Update: January 6, Mayo Clinic, Medicine
January 6, 2010 As today goes on, and people continue to contact me for updates, I am remembering more about yesterday's appointment. But first, a funny story: Yesterday morning Sus and I got up and got ready for the day. We knew I had an appointment at 11 and were planning to...
Kate Update: January 5, Mayo Clinic, Day One
January 5, 2010 Today was my first day at Mayo. It went well. I have an unusual doctor, with a "bedside" manner unlike anything I have experienced previously. Despite his odd behavior, my doctor seems to really know his stuff. He has me on a new five-part regimen which consists of...
Kate Update: January 4, Arizona, Mayo Clinic
I've pondered how best to relate the events of the last month, and have decided to be most open and share the notes I wrote for myself , while in Arizona. These will read a bit more like a journal than you may be accustomed to, but I make no...
Kate Update: What is Possible and Getting Lost
Those who love me don't understand why I have not written. In fact, I do not understand why I have not written. They remind me I committed to tell you about the health issues I face, so we may create a positive and fresh community of folks who strengthen each...
Kate Update: Please Forgive Me
I know I should have something to say. I know that you all understand me more than most. I know I owe something to all the wonderful people who have had me in their prayers over the past three months. I really do. In fact, I think I will spend the entire...
Fibromyalgia and Chronic Fatigue Blog
National Thyroid Awareness Month: Thyroid Testing
Last week, we talked about some red flags of thyroid problems—sudden weight gain or inability to lose fat, fatigue or insomnia, chronic sinusitis or lingering infections, for example. Perhaps you decided it was time to get an expert’s opinion, and if so, your doctor will probably want to perform thyroid...
National Thyroid Awareness Month: Red Flags to Watch
Happy 2010! We hope the first month of this new year has started off on the right foot for you—and did you know that January is National Thyroid Awareness Month? Here, FFC’s Kelly Boulden, MD, gives a heads-up on when it may be time for a checkup on your...
Question of the Day: What’s a biofilm?
Check out what FFC’s Werner Vosloo, ND, MHom, has to say about biofilm communities for CFS and fibro patients! Biofilm communities are a bug survival strategy in FMS and CFIDS patients. These communities are well-structured colonies of highly interactive microorganisms, such as bacteria, viruses, yeast, and mycoplasma. Biofilm structures make...
CFS and XMRV on the ‘Dr. Oz Show’
If you missed the recent “Dr. Oz Show,” where Dr. Mehmet Oz and Dr. Donnica Moore discussed chronic fatigue syndrome, and a retrovirus that has been linked to the condition, don’t worry—we’ve got a recap here for you. A U.S. research team recently found a retrovirus called XMRV in the blood...
Many who suffer from Fibromyalgia and/or Chronic Fatigue Syndrome at one time or another find themselves depressed over how they feel, the difficulties in finding effective treatment, lack of energy, the ongoing pain, or how loved ones respond to their illness. For many just being “happy” is a daily task...
Isoprinosine Update: Immunovir — A Promising, Low Cost and Safe Prescription Antiviral
By Alina Garcia MD, Fibromyalgia & Fatigue Center of Las Vegas Recent findings presented at the 2009 International Association of Chronic Fatigue conference in Reno, Nevada Conference by University of Miami, researchers revealed promising potential for Isoprinosine (ISP) in the treatment of Chronic Fatigue Immune Deficiency Syndrome. Sixty one patients were studied,...
A Sofa with a View
My Thoughts on Fibromyalgia and Its Effect on My Children
As my Fibromyalgia and what I am beginning to suspect is the added bonus of Chronic Fatigue Syndrome (how can you have Fibro and not Chronic fatigue?) is at an all time high on the Flare-o-meter, I have been seriously considering the affects that having a chronically ill mother has...
I have been sadly neglecting my blog routine, among other things. Winter has cast a shadowy spell over me and the desire to write has been nil. I feel like I have nothing to say. I have been reading others blogs and thoughts but have not felt like sharing. Today,...
Last night my husband let loose all his pent-up, seething anger about my illness that he silently keeps at bay from me. There was a Surprise Birthday party for one of his friends and he was fuming because I did not want to go. I have been in agony lately...
The news has been filled with the horror that has descended upon Haiti. When such a devastating natural disaster strikes we are reminded how fragile and precarious human life can be. I can not imagine the scenarios being played out there. As I sit here snuggled in my warm and...
The 5 Stages of Grief - Fibromyalgia Style
I have come to the point of acceptance (thanks, hold the roaring applause) concerning having a chronic illness. It has been a rough few months since my Fibromyalgia sentencing in September but I feel settled into a familiar co-existence with the "F" word.I have spent endless hours on the...
Its Already Been a Long Cold Lonely Winter ...
"Little darling, it's been a long cold lonely winterLittle darling, it feels like years since it's been here"- the BeatlesThe past few days I have not felt like writing or creating or basically moving. My brain and body are weary and feeling incapable. My head has been heavy and I...
The Fibrochondriac
I’ve had a miserable couple of months. Pretty much since we moved into the new place on Christmas I’ve had a hard time getting the engine in gear. I’ve had more bathrobe days than I care to count. I get up and do stuff when I absolutely have to but other...
If you have fibromyalgia and are a California resident…
I just got an interesting letter from The National Fibromyalgia Association: On Tuesday, March 16, the National Fibromyalgia Association – along with members of the California NeuroAlliance – will be in Sacramento to meet with state lawmakers about proposed legislation that ensures continuation of care for prescription drug...
So the gang all got together and came up with a plan…let’s put on a show! Kidding. Actually “the gang” started with a forum for women with chronic “Invisible Illnesses” called Chronic Babe. (Chronic Babe is the brain child of Jenni Prokopy.) The one thing we all have in common is...
I just spent several hours unsubscribing from a whole bunch of emails, catalogs, newsletters, blogs about blogging…all the stuff that I skim through fast and then hit the delete key. I have three different email accounts to do that to so it took some time. I know, three email accounts?...
I’ve got a bazillion reasons not to post lately. My computer is slower than molasses and my brain is running at the same speed. And I can’t seem to drag the computer into the bathroom. But whatever. I’ve got a couple things on my mind so thought I’d share. Be...
Bringing new life into the world makes you think…
Healthcare from my daughter Teresa’s perspective… Since I’ve started looking into the medical system from a bringing life into the world perspective, I’ve found the US is a scary ass place to do it. For 1/3 of the cost of a hospital birth a low risk woman can give birth at...
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