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Chronic Chick Talk
I have been homeschooling my daughter for the last couple of years. It was not an easy chose to home school her in the high school years, but it was the best thing for her. We usually buy most of our school supplies before public and private school kids go...
Hello readers, I have been having major issues with my blog not from my own doing. There is a bug running around that attacks your header, so make sure your permissions are set correctly and only the file information you put into the header. It is a really nasty bug that...
Checking to see if things work…...
A friend of mine was having a lot trouble keeping on her feet after a divorce. She fought to keep her house during the divorce, but she had to let the house go because she could not afford to take care of the house and her son. She lost her...
Music Monday: Bryan Adams By A Teen Girl
Algebra U Do It For Me lyrics (everything I Do) I Do It For You -bryan Adams TAK Video - Algebra U Do It For Me Music Videos Music Videos by VideoCure Come join Music Monday and share your songs with us. One simple rule, leave ONLY the actual post link here. You...
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Dancing With Butterflies
Everything ran like clockwork… I felt in complete control of my life and it may sound too good to be true but I am living my dream. Everything was perfect just the way I planned them to be. It was the year 2001, I’m a fresh graduate, had my dream job in...
I need a vacation, actually I want a vacation but of course for someone who is sick like me I just cannot go whenever I please.. since I live in a tropical country I always wanted to experience snow and maybe go skiing. It will probably be a wonderful experience...
Did you know that you can find term life insurance quote online? I just think that everyone should consider getting one just for your own peace of mind. We don’t know what’s going to happen with us in the future so it’ll helps if we have an insurance that can...
Are you protected and secure? In these time when financial turmoil is all around we tend to neglect to save for the future. When it is true that we shouldn’t worry about tomorrow for God will take care of it, it is also true that we need to help ourselves...
It’s been a while.. I purposely left blogging for awhile to concentrate on getting well. A few weeks ago I’ve been suffering from severe headaches. I had CT Scan and MRI that made me worried again.. Another lupus flare is threatening to ruin my good condition but I only have...
I was out with some friends last night.. after days of hibernating and solitude I finally feel fine. I was hoping to have a great time with my friends and I did, but there is one unexpected news that suddenly broke my heart… I am not sure of what to...
Lupus News From Medical News Today
Psychotherapy May Help Autoimmune Disease
This study shows that cognitive behavioural therapy (CBT) is effective in dealing with patients suffering from lupus and high levels of daily stress as it significantly reduces the incidence of psychological disorders associated with lupus and improves and maintains patients' QOL, despite there being no significant reduction in the disease...
Antibodies Linked To Cardiovascular Disease Increase In Patients With Active Lupus
A study by researchers in Australia and the United Kingdom suggests that autoantibodies to fat binding proteins significantly increase in systemic lupus erythematosus (SLE) patients with active disease......
LFA President Presents At The 12th Annual BIO CEO And Investor Conference
During the 12th Annual BIO CEO and Investor Conference held on Tuesday, February 9, 2010 in New York City, Sandra C. Raymond, President and CEO of the Lupus Foundation of America (LFA), participated in a panel discussion on the future of potential new treatments for lupus. The conference was hosted...
New Therapeutic Approach Identified For Kidney Disease Associated With Lupus
Investigators have identified a new disease mechanism and therapeutic approach for a type of advanced kidney disease that is a common cause of complications in patients with lupus. The study was led by investigators at Hospital for Special Surgery and appears in the January 25 online Early Edition of the...
The Lupus Foundation of America, Inc. (LFA) is seeking applications for its 2010 Gina M. Finzi Memorial Student Summer Fellowship Program. The purpose of these awards is to foster an interest among young investigators in lupus research under the supervision of an established in investigator......
Epratuzumab Receives U.S. Patent - Lupus Foundation Of America, Inc.
A U.S. patent has been issued to Immunomedics, Inc. for epratuzumab, a monoclonal antibody under development as a potential new treatment for lupus. In August of 2009, Immunomedics and its partner, UCB of Belgium, reported promising data from a phase IIb clinical study of epratuzumab involving 227 individuals with...
Despite Lupus
The Alliance for Lupus Research recently came out with a new lupus video. It's pretty good - take a look and see for yourself!...
What's the second worst offense you can make when you go to the doctor, in my opinion? Asking a question and not remembering the answer! I recently committed this, not once, but twice - once with my pulmonologist and again with my rheumatologist. Here's what happened -Last fall, I started...
Doctor's orders, straight from the doctor
Here's a snippet of an email that a friend of mine sent me years ago when he found out that I was diagnosed with lupus. He was finishing his residency at the time - just months away from becoming a full fledged ER doc. I think his words should be...
Henrietta Aladjem - The Original Lupus Lady
While I'm embarrassed to say that I'd never heard of Ms. Aladjem until recently, a lovely woman at one of my book signings told me about her, and it seems that she had quite a story. Author, advocate, and lupus survivor - Ms. Aladjem appears to have made a significant...
Fashion faux pas - count me in
It's recently come to my attention that I've been committing a major fashion faux pas - and Deirdre's been suffering for it!At the end of last summer, I was dressing Deirdre in several little pants outfits that I'd inherited from my sister...each one cuter than the last. The pants fit...
Stubborn and Head Strong: Prerequisites for Lupus?
I'm sure you've seen this Gary Larson "Far Side" cartoon before. If not, feel free to insert a picture of Henry (pugalito-extraordinaire, may he rest in peace) in the strip. This was Henry to a "T". He'd stare at you the whole time he was being reprimanded, cocking his head...
Lupus News
Lee Conley, 52, faced down her pain
MASON -Lee Conley didn't take the little things for granted. Last August, more than 30 years after the Mason resident was diagnosed with the auto-immune disease Lupus that broke down her joints, even carrying her own filled plate back from a buffet by herself was such a triumph that she...
Can Nutrition Help Manage Lupus?
Lupus symptoms vary widely from one individual to another, and what is true for one person with regard to medication and lifestyle changes that can help may not be true for another....
The founding leaders of the University of Pittsburgh Medical Center's Lupus Center of Excellence are moving to rival West Penn Allegheny Health System at the end of this month, officials announced Wednesday....
La Jolla Pharmaceutical Dropped From Nasdaq
San Diego-based La Jolla Pharmaceuticals , the failed biopharmaceuticals firm which was previously developing treating lupus renal disease, reported today that it has received notification from the Nasdaq that it will be delisted from the market as of Thursday....
If you are a parent of a child with a disability or a special need and would like to be in touch with someone who understands, call the Parent to Parent program at 727-2706 or visit www.parenttoparent.org . - The Erie Lupus Support Group meets the fourth Thursday of each...
I was a full-time Bartender/Server for twenty-three years. Then in the summer of 2003 I became very ill, and was diagnosed with Lupus shortly after....
Latest News from the Lupus Research Institute
Antibodies linked to cardiovascular disease increase in patients with active lupus
Study finds SLE patients at risk for developing atherosclerosisA study by researchers in Australia and the United Kingdom suggests that autoantibodies to fat binding proteins significantly increase in systemic lupus erythematosus (SLE) patients with active disease. This increase in anti-apolipoprotein (anti-Apo A-I), anti-high-density lipoprotein (anti-HDL), and anti-C-reactive protein (anti-CRP) may...
2010 Shady Ladies® Celebrity Sunglass Auction Raises Over $85,000 for Innovative Lupus Research
January 30, 2010, Wellington, FL—Nearly 200 “Shady Ladies”—double the number from last year!—streamed in to Wellington’s Palm Beach International Equestrian Center in late January for a “Guys and Dolls” themed evening featuring cocktails, a silent sunglass auction, and a ringside dinner and live auction during the...
CVD Risk in Lupus Worse for Men and Older Patients
The greatest risk for atherosclerotic vascular events among patients with systemic lupus erythematosus is for men and older individuals of both sexes, researchers said. During eight years of follow-up for more than 1,000 patients enrolled in the Systemic Lupus Erythematosus International Collaborating Clinics (SLICC) registry, 97 vascular events occurred in 72...
LRI Researchers in Texas and New York Advance New Ways to Easily Diagnose Lupus Kidney Damage
Newswise — Simple urine tests for four proteins might be able to detect early kidney disease in people with lupus, researchers at UT Southwestern Medical Center have found in an animal study. Although it might take years before such tests could be used clinically, the findings suggest they could pinpoint kidney...
Activity Helps Prevent Cardiovascular Disease in Lupus
LRI-funded researchers Daniel J. Wallace, MD, Bevra H. Hahn, MD, Maureen McMahon, MD, and colleagues reportLow levels of physical activity were associated with increased subclinical atherosclerosis in women with systemic lupus erythematosus, a cross-sectional study found. Analysis of data from patients who underwent carotid ultrasound and answered detailed questionnaires about their...
The Life of a 20-Something With Lupus
Check out this letter I got in the mail:You know, it feels really great to get recognized like this. This award goes to the top two people in the entire school who took this course last semester! I'm really happy and proud that I managed to get a mark so...
check out this video my friends made for a doritos contest!
Watch and help them win!...
Last week Wednesday after getting my dialysis supplies delivered, I went to see an ENT doctor. He and a medical student looked in my ears and did not seem too concerned. A preliminary hearing test was done, and this test showed that my ears seem to be ok...
My ears feel different. They seem to be popping a little bit more. I don't know if that's a good thing or a bad thing. I'm gonna guess its a good thing...maybe whatever fluid that was packed in there is getting "less packed"? Bah that probably didn't make any sense....
I sit here doing my best to type. My ears are still plugged. My head hurts. My uppers arms/shoulders as well as my thighs/hips hurt.I went to see my nephrologist on Thursday. My hemoglobin is "holding steady" at 81 (or 8.1). Still quite low, but...
Being hard of hearing is so very frustrating. I find myself having to look at people's lips in order to help me understand what they are saying. It's getting kind of scary for me. I'm sure people have had ear infections, have been hard of hearing...and it...
Everyone's Blog Posts - BUTTERFLIES AMONG US
Can Blood Tests Help Us Learn about CNS Lupus (Lupus and the Brain)?
Some people with lupus can develop mild or, more rarely, severe inflammation of the brain, also called Central Nervous System lupus (CNS lupus). Very rarely, people can develop serious problems from CNS lupus such as seizures or strokes. Sometimes it is hard to know the difference between CNS lupus and...
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Editor for Lupus Now Magazine looking for answers to the following "My View" question
Good morning everyone.The editor of Lupus Now magazine is looking for answers to the following "My View" question."What does your lupus support group mean to you?"Email your response to LupusNow@lupus.org. Make sure your answer is 30 words or less. Please include your first name and last name in the email,...
CLEAN YOUR KIDNEYS FOR LESS THAN A DOLLAR
Subject: Kidney Cleaning …...
Meet Dr. Michael Madaio, Your Lupus Expert on Kidney Issues and Lupus for the March 2010 Q&A
The Lupus Foundation of America (LFA) has revised how it handles webchats. The new format -- now in the form of a Q&A, and no longer a "live" chat -- will still feature the nation's leading experts in lupus.As March is National Kidney Month, the LFA invites you to join...
Plaquenil 200 mg 3 x a day Lyrica 200 mg 2 x a dayCoumadin 1.25 mg 1 x a daySimvastatin 40 mg 1 x a dayPrevacid 30 mg 1 x a dayAtenolol 75 mg 1 x a dayFluconazole 200 mg 1 x a dayLasix 20 mg 1 x a daySalagen 10...
On the Road to a Lupus Cure
Can Blood Tests Help Us Learn about CNS Lupus (Lupus and the Brain)?
Some people with lupus can develop mild or, more rarely, severe inflammation of the brain, also called Central Nervous System lupus (CNS lupus). Very rarely, people can develop serious problems from CNS lupus such as seizures or strokes. Sometimes it is hard to know the difference between CNS lupus and...
Editor for Lupus Now Magazine looking for answers to the following "My View" question
Good morning everyone.The editor of Lupus Now magazine is looking for answers to the following "My View" question."What does your lupus support group mean to you?"Email your response to LupusNow@lupus.org. Make sure your answer is 30 words or less. Please include your first name and last name in the email,...
Meet Dr. Michael Madaio, Your Lupus Expert on Kidney Issues and Lupus for the March 2010 Q&A
The Lupus Foundation of America (LFA) has revised how it handles webchats. The new format -- now in the form of a Q&A, and no longer a "live" chat -- will still feature the nation's leading experts in lupus.As March is National Kidney Month, the LFA invites you to...
Contest: Vote for the "Cure Lupus" Car
A friend of the LFA's cause in Facebook has designed a car in a contest sponsored by Toyota Racing. Their hope is to have a tremedous turnout for people voting for the Cure Lupus car.On April 1st, ten finalists will be selected through a panel of judges as well as...
Seeking Interviewees for Upcoming Issues of Lupus Now Magazine
The Editor of Lupus Now magazine seeks people with lupus for three upcoming articles:Reproductive Health: if you are a woman with lupus who has experienced fertility issues, concerns about the use of oral contraceptives, loss of bone mass, or early onset of menopause, we would like to hear from you.Ways...
Spring 2010 Issue of Lupus Now Magazine ... Coming in March to a Mailbox Near You!
The BIG news on the upcoming Spring 2010 issue of Lupus Now magazine is that singer-songwriters Julian Lennon (son of Beatle John Lennon) and American musician James Scott Cook are featured on the cover! These two have given their unwavering support to our lupus awareness and research efforts, and their...
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North Charlotte Lupus Support Group (New!)
The Lupus Foundation of America, Piedmont Chapter…has added a new local support group. Meeting...
Lalah Hathaway on stage How many Michael Jackson songs can you sing to the chords in Rock With You?...
Oh. God. Oh god. Ohgodohgodohgod. When I wrote about the cold front, and my sudden lack of appetite,...
So the fact that ganoderma is supposed to be super healing for your skin is totally true. I just rea...
Toes is home. He is on the end of my bed now, helping me write. Super glad to have him back in the...
As I write this, I am laying on my belly in my bed at a quarter after three in the morning. Why? Bec...
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