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Blindbeard's Multiple Sclerosis Blog
I have 2 completely boring things rattling around in my mostly empty head, so I am going to give a 2 for 1 special at bargain basement prices.I Hate Being PoorLooking at houses has been a reminder of exactly how incredibly poor we really are. Within our price range is...
*Author's Note: I gotta write this quick before the kids wake up. We have Jabber this weekend and have not had a quiet moment since he climbed into the car. If they spill out of their rooms before I'm done, this will disintegrate into a pile of words with no...
Yesterday we were talking about The Day Blindbeard Went Crazy, ie when I tried to kill myself. We were talking about the note I left, which was the second biggest mistake I made that day. They took the note and everyone wanted to talk about it. The cop who took...
I Just Don't Have A Thing To Say
But what's new? So much little crap is going on and none of it is worth a full blog post, so as usual I will just condense it into bite size pieces so no one chokes -- much better than me chewing it up and regurgitating it down your throat...
At the MS gym that I am now a proud card carrying member of, which I never saw coming due to my negative preconceived notion about it, they are making a quilt to raffle off as a fund raiser for the gym. They want everyone who is so inclined to...
I got this comment the other day in reference to my blog post http://http://blindbeardsmsblog.blogspot.com/2009/03/i-hate-puberty.html.Why do you need to be so critical, how about instead of venting your story off to the rest of the world you remember your own puberty and realize that she just might be embarrassed or scared?...
ScienceDaily: Multiple Sclerosis News
Migraine more common in women with multiple sclerosis
Migraine is seen more frequently in women with multiple sclerosis than those without, according to a new study....
Modifying Neural Stem Cells Improves Their Therapeutic Efficacy
Stem cells isolated from the brain of adult mice (adult neural stem cells [aNSCs]) have shown very modest therapeutic effects in a mouse model of the chronic inflammatory neurodegenerative disease multiple sclerosis. But now, researchers have developed an approach to enhance the therapeutic effects of aNSCs in this model of...
Early protein processes crucial to formation and layering of myelin membrane
A set of protein processes required in the early-stage conversion of glucose into fatty acids are critical to the proper formation and layering of myelin membrane, according to researchers. Essential to the proper functioning of the nervous system, myelin sheaths surround the axons of neurons and provide insulating effects that...
Multiple sclerosis is more aggressive in children but slower to cause disability than in adults
Magnetic resonance images of patients diagnosed with multiple sclerosis in childhood show that pediatric onset multiple sclerosis is more aggressive, and causes more brain lesions, than MS diagnosed in adulthood, researchers have reported....
Good news on multiple sclerosis and pregnancy
There is good news for women with multiple sclerosis (MS) who are pregnant or thinking about becoming pregnant. A new study shows that pregnant women with multiple sclerosis are only slightly more likely to have cesarean deliveries and babies with a poor prenatal growth rate than women who do not...
Teenage obesity linked to increased risk of multiple sclerosis
Teenage women who are obese may be more than twice as likely to develop multiple sclerosis as adults compared to female teens who are not obese, according to a new study....
Navigating the Journey of MS
Friday night I decided I was going to register for the MS Walk in my neighborhood.This was to be my big walk. I was so committed to finally walking 3 miles to raise money for NMSS but as we all know when you have MS things don't always go as...
This is our newest product. It is called the Handiplac and it is great for those of who use a blue handi placard. I don't know about you but when you open the car door on a somewhat windy day the placard blows off the rear view mirror and sometimes...
yesterday I participated in Legislative Day. An event puttogether by the wisconsin chapter of the NMSS.I have gone to this event many times and each time I find it so much fun. One of the best events I have ever taken part in.It was rainy so a few people cancelled....
We added another new shirt to our website http://www.themsshoppe.com/.The shirt is a beautiful shade of Jade. Not quite green. Not quite Blue. It reads " Life is a trip when you have MS". It is for all of us who trip over our own feet. Please check it out. Thanks...
In case you didn't notice I've been gone for a while. Mark & I went on vacation. It was so relaxing and quite nice to see the sun again. I even came home with a little tan. We went on a somewhat spur of the moment cruise. We had planned...
I have so much to do today I don't know where to start.I guess I shouldn't say that because I have been working on my list since about 8 am.I am making progress but I want it all done already.Truth be told I want to park myself on the couch...
Carnival of MS Bloggers
Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Poetry and Life with Multiple SclerosisWalking Then and Nowby Judy of Peace Be With YouWalking is routinefor others but not for me.I wish it were, though.It used to be so.I...
Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Dancing and Anne's RegimenAnd we were really dancing by Dan Digmann Moving to the music on the dance floor is nothing new for Jennifer and me. At weddings and parties...
Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Courage, Hope, Joy, MusingsCourage And A Little Hope by BlindbeardAt the MS gym that I am now a proud card carrying member of, which I never saw coming due to...
Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Living a Normal MS Life and Cognitive ReservePE Class, Wildwood Flower, and Buttonsby Kmilyun at Bifurcate in the RoadAugh you might be asking what in the world do adaptive PE,...
Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Happy New Year!!Here we are in 2010. Wow. This will be the 3rd year in the Carnival of MS Bloggers' existence. Can you believe it?! We've...
Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.Family, Friends, Love and Support - both Near and FarHanging on by My Fingernails by MaryanneThat's what I'm beginning to feel like. Since this is an MS blog I will...
Judi B's blog
Spam should now be under control!
Thanks for alerting us to the spam problem- the sneaky method used was a seemingly genuine forum contribution that was then used to send spam as comments on your individual forum entries. As we do not always catch every comment submitted, and the original request for a password seemed valid,...
After I had been on the diet for well over a year, I experienced many signs of recovery- from the subtle (more energy, better cognition, healthier digestion) to the sublime (no more ice-pick-in-the-eye trigeminal nerve headaches, recovering lost sensation, stronger trunk and leg muscles). I still had a long way...
Zoran’s Bosnian Cake + Valentine’s Variations
Zoran is a new family friend who gave me this recipe for Christmas. His cake is made with sugar, egg whites, white flour and milk. I confess to having 1 small piece of his cake at Thanksgiving and 1 the day after. Although I did not appear to suffer any...
It is so heartening to read the exchanges between participants on this website. The kind of advice and support you offer one another is invaluable. Please know that even if your entry does not receive a comment in return it does not mean that your questions and concerns were not...
I welcome all newcomers to our site and remind those of you who have often checked in over the last few years that your comments, personal stories, suggestions and recipes are always welcome and useful for all of us no matter where in the world that we live. Please feel...
Ok, the holidays can be happy events and a heartful gathering time for families and friends. They can also be quite stressful. Too many engagements to show up for, too much food that is not on the diet, and the desire to either show a happy face or the need...
MedicineNet Daily News
Online Dating as Honest as Real Life
Title: Online Dating as Honest as Real LifeCategory: Health NewsCreated: 3/11/2010 10:10:00 AMLast Editorial Review: 3/12/2010...
Occasional High Blood Pressure Risky, Too?
Title: Occasional High Blood Pressure Risky, Too?Category: Health NewsCreated: 3/12/2010 11:16:00 AMLast Editorial Review: 3/12/2010 11:16:29 AM...
Title: New Knee May Improve BalanceCategory: Health NewsCreated: 3/11/2010 10:10:00 AMLast Editorial Review: 3/12/2010...
Pre-Season Test Spots Baseball Pitchers at Risk of Injury
Title: Pre-Season Test Spots Baseball Pitchers at Risk of InjuryCategory: Health NewsCreated: 3/11/2010 12:10:00 PMLast Editorial Review: 3/12/2010...
Mind Reading Moves Closer to Reality
Title: Mind Reading Moves Closer to RealityCategory: Health NewsCreated: 3/11/2010 12:10:00 PMLast Editorial Review: 3/12/2010...
Retail Spices Recalled in Salmonella Scare
Title: Retail Spices Recalled in Salmonella ScareCategory: Health NewsCreated: 3/12/2010 11:08:00 AMLast Editorial Review: 3/12/2010 11:08:28 AM...
Chain Reaction...
Hello Readers! Long time no contact! :-)Well it's been 2 month since I last posted and with good reason. See the chart of my life's events below.Sept 30th - Had to move in with in-laws as husband was out of work since Mid-July.Oct/Nov - Working hard at my...
Last time I saw my Neuro about 6 months ago, he mentioned to me that I should probably not have serious MS progression until after I hit Menopause. Not that I won't have flares or that he was determining my disease progression, because we all know that's not possible,...
Anxiety, High Blood Pressure and Stress
Yup. It's back. I have been doing so well at work for 4 months now that I've taken on much more responsibility including some management. My mind loves it, my body doesn't. I've been through this so many time with my past 2 jobs and I...
Gerber DaisiesI'm walking through the mall with my friend "K", taking in all the bright colorful clothes and shiny jewelry. Looking for a new perfume we stop in the Macy's fragrance department and ask for samples. Alas, the clerk informs us that the perfume companies are cutting back...
How These Five People Fight MS
Here is an excellent new website with some superb bloggers talking about how they live victoriously with MS. Check it out - http://www.howifightms.info/...
October is my favorite Month...
Hello! Long time no "see". Life is finally calming down a bit for me now so I am going to blog on the latest and greatest.MoveWe've been officially moved in with my in-laws for 1 full week now and so far so good. We'll see if I...
Living! with MS
I have been away from home for the last twelve hours for the third day in a row. Lately I feel so tired I would like to lay down on the hard floor at work and go to sleep but there is always something that needs to be done.I...
Not too much to report here. I'm back from a long weekend break. Aside from Spring Break, this may be my last one until the school year ends. I have my fingers crossed that I have a sick day or two saved, but I'm not sure. ...
A quick apology to all my awesome "followers..." Sorry I have been so scarce lately. Life has a way of catching up with us at times and leaving us absolutely spun around. That certainly describes my life lately. I am finally taking a little R&R this...
Debbie asked if I would add her blog to my page and her story intrigued me. Please check out her page and read her story.Support Walk MS!...
Just a few moments to indulge in a guilty pleasure: blogging, before I get back to working. I have been working like a dog. The job is haunting my every waking hour and even some of my sleeping ones. This afternoon I took time out for a...
Sadly, I'm not even interesting to me anymore. I'm sick of sameness, sick of listening to myself mull over the same crap, sick of the job, sick of the routine and I'm still seeing little change on the horizon. I want to do something different, create something beautiful,...
My Journey: Living well with MS - by Diana de Avila
Moving on to the next thing ...
It is difficult to live life a day at a time in the unknown. It's impossible to predict mood, physical state and everything else. Sometimes I think that it's only me stuck in that place and then I realize it's everyone. We all have to live day...
I am definitely a happy camper today because the Sarcoid Pulmonary specialist is pretty certain that I don't have Sarcoidosis. I am extremely happy about that :-) He is going to do a pulmonary function on me in September when I go back to see him. He...
Tomorrow I head to the Sarcoid clinic and it seems like it could be a new chapter for me and my journey towards trying to understand all the strange things that happen to me. Autoimmune disorders are weird and they seem to run in groups.Yesterday I was at a...
Going to a Sarcoid Clinic at Albany Med.
I think that God is dropping things in my lap very providentially and that after a long time, I will be able to rule in or rule out Sarcoidosis (which is autoimmune in nature). After talking with the Pulmonology clinic at Albany Medical Center and requesting Dr. Napier...
Whooping Cough .... Anything is possible with me ....
I have been fighting what I thought was bronchitis since before the New Year and was just diagnosed with whooping cough. How strange is that!I saw my fantastic asthma doctor today (he was the one who diagnosed it) and his name is Dr. Jocelyn Celestin. I have been...
Still chasing the Sarcoid train ...
My neurologist is still believing I should continue down the Sarcoidosis path given the recent lung lesion, bronchial infections, eye stuff (is it uveitis or optic neuritis) and joint pain and neuro symptoms which can totally go along with sarcoid.My next step is a pulmonologist and a GAD-enhanced PET scan...
MultipleSclerosisCentral.com - Latest Multiple Sclerosis News
Challenging the Brain May Help People with MS, Autism, Stroke
Scientists have found that remedial reading training for children who are poor readers causes the growth of white matter tracts in the brain, a finding that suggests behavioral training can spur brain growth in people with neurological conditions such as stroke damage, multiple sclerosis, or autism....
Advanced MRI May Help MS Diagnosis
Diagnostic imaging experts say conventional MRI technology may not be enough to detect MS in its early stages, and more advanced techniques may be needed to complete the diagnostic picture....
Exercise May Protect Brains of MS Patients
A new study has found that exercise appears to have a protective effect on the brains of people who have multiple sclerosis....
Drinking Milk While Pregnant Reduces Babies' MS Risk
Researchers at the Harvard School of Public Health have found that children born to women who drink a lot of milk and have a high dietary intake of vitamin D are less likely to develop multiple sclerosis in later life....
Vein Blockages Common in People With MS: Study
Scientists at the University of Buffalo have found that people who have multiple sclerosis are more than twice as likely to have a condition known as chronic cerebro-spinal venous insufficiency (CCSVI) than people who don't have MS....
Migraines May Boost MS Risk: Study
According to new research, migraine headaches are more common in women who have multiple sclerosis than they are in women who do not have the condition....
Jim's DEEP Thoughts
I have created a new blog called "Jim's Devotional Blog". Only people close to me will be able to read this blog....
Keeping a thoughtful record of your spiritual journey can promote godliness. It can help us in our meditation and prayer. It can remind us of the Lord’s faithfulness and work. It can help us understand and evaluate ourselves. It can help us monitor our goals and priorities as well as...
By meditating on Scripture you are transformed into the person God intends you to be. Meditation is a blend of your words to God and His Word to you; it is loving conversation between you and God through the pages of His Word. It is absorption of His words into...
My Personal Spiritual Meditation in my Christian Faith
Psalm 19:14 Let the words of my mouth and the meditation of my heart be acceptable in your sight, O Lord, my rock and my redeemer. Psalm 49:3 My mouth shall speak wisdom; the meditation of my heart shall be understanding. Psalm 104:34May my meditation be pleasing to him, for...
God is really teaching me lately.......
In relation to justification and sanctification, there is a substantial difference and that Luther did not protest in vain. Scripture teaches that justification is a declarative act of God, not a process. Jesus promised immediate salvation to believers: “He who hears My word, and believes Him who sent Me, has...
I am thinking of my life and I am sure this is affecting many other Christians. Why is it that so many us professing Christians make no spiritual progress, and indeed make no efforts to grow in grace? Is it possible to be a Christian and yet ignore the desire...
Living Life With Sarcasm, Kids, and MS
Holiday Memories And A Little Magic
"Freedom is nothing else but a chance to be better."-Albert CamusI've always tried to take my kids to see fireworks on the 4th.But with last summer being my first with MS, and it being the hottest summer in existence (atleast to me) we didn't make it and I can't tell...
It seems a little funny to me that I started this blog as a form of therapy to help me deal with my journey down the winding road of MS, and yet, when it gets rough the last thing I feel like doing is writing about it.I've made some decisions...
I had my first real flare-up since starting the Tysabri infusions five months ago. It happened three weeks ago and, while I am grateful for only one flare-up in a whole five months, I have to say that this one was quite impressive in it's intensity.I've had some pretty impressive...
Today is my "One Year Anniversary". Exactly one year ago today, I had my life turned upside down by a diagnosis I didn't expect and an illness I will never understand.I don't know if any of you have ever had this happen, but last week I was sitting in the...
**Image borrowed with love from CartoonStock **I'm sure I can't be the only one who is having these problems.There have to be others of you out there, fighting back the anger, tears, curses, screams of agony.You might be afraid to come out of the shadows and talk about it,...
I've had a rough couple of weeks.What's funny about that statement, though, is that they were also pretty wonderful too.Contradicting, I know. But I've been told many times, by different people, that I tend to be a "Walking Contradiction" so I'm basically just sticking to form.The wonderful part was that...
multiple sclerosis
Acorda MS drug approval sparks buyout buzz
Late Friday afternoon regulators at the FDA approved Acorda's multiple sclerosis drug Ampyra based on data demonstrating that patients taking dalfampridine were able to walk faster than a control group. And this is the first time the FDA has approved a therapy for improving walking speeds. "Trouble with walking is one of...
FDA approves Acorda's new MS drug
The FDA announced Friday afternoon that it has approved Ampyra (dalfampridine) extended-release tablets to improve walking in patients with multiple sclerosis. In clinical trials, patients treated with Ampyra had faster walking speeds than those treated with a placebo. This is the first drug approved for this use. "Trouble with walking is one...
Blockbuster data: Studies back efficacy of late-stage MS pills
A trio of new studies has underscored both the distinct therapeutic advantages as well as the blockbuster market potential of two new oral drugs for multiple sclerosis. But while the studies demonstrated a reduction in the number of relapses and a slowing of disease progression--while beating an established interferon therapy...
Avanir stock boosted by promising Zenvia data
A Phase III trial of Avanir Pharmaceuticals' closely-watched drug Zenvia showed that the drug relieved Pseudobulbar affect (PBA) in a subset of multiple sclerosis patients, sending Avanir's stock up as much as 16 percent. PBA is a neurologic disorder that occurs secondary to neurologic disease or brain injury, causing sudden and...
Novartis on track to seek oral MS drug OK
Novartis took a big stride toward filing for approval on an oral therapy for multiple sclerosis, revealing that a two-year, Phase III trial for FTY720 produced solid evidence of its superiority to a placebo. Better yet, though, some analysts were quick to conclude that the data lays out a clear case...
Opexa shares rocket up on promising MS trial data
Shares of Opexa Therapeutics more than doubled this morning after the developer announced that 83 percent of all patients taking its therapeutic vaccine for multiple sclerosis had remained relapse-free for a year. The mid-stage trial focused on 150 patients with relapsing-remitting MS, an early stage at which the disease flares up and...
Maggsbunny
What a year 2009 has been. Too much has happened to encapsulate it all without doing a marathon post, which I really don’t have time for just now. Suffice it to say that it has not been the worst year for me. Quite a good one, actually. One of the reasons...
I have been a hideously bad blogger of late. And that is not about to change, lol. But I thought I could spare two minutes to post a little video. You see, we bought a new puppy on the 30th of November. We decided Beary needed a doggy friend. So without further ado,...
Photo’s and a vlog! All comments welcome ;-P
I’ve been meaning to take a video of Beary greeting Michael when he gets home from the office, because it is too darn cute. No-one can resist an animal that gives you such a super-duper royal welcome home! Anyway, so a couple of days ago I took the video. Turns out...
…Michael left the sweetest comment on my last post… “You and Beary are clearly the prettiest roses in the garden “ Ooh, that does earn him a brownie point or two. Just as well, because he lost a few yesterday… We have a CD in the car with Foster & Allen’s Maggie on...
Scraping the bottom of the barrel…
*sigh* Beary is not the drawcard that she once was. Not even one comment on her vlog. Shame. She keeps checking if someone wrote something nice about her, but nothing doing. And as if that isn’t bad enough, there is a fat ginger cat flaunting itself on the other side of...
Another vlog, starring…Beary! :-)
I’ve read before that Chows are a somewhat lethargic breed. They’re known for being good apartment dogs. Beary, on the other hand, is calm enough for most of the day, but every now and then she gets this spurt of energy that needs urgently to be dissipated. We do take her for...
My MS Journal
I just got home yesterday from Seattle. I have been in the hospital for more than 2 weeks and was more than ready to come home, so I thought. I am still really having a hard time and I don't know what the heck is going on. ...
Where has the time gone? Today is the 6 year anniversary of my MS and what a 6 years it has been. Lots of ups and downs, LOTS of changes....some good, some bad. I'm sure you all understand just what I mean as this illness of ours...
First off I would like to say Thanks for all the well wishes. I did have a touch of pneumonia and spent 3 days in the hospital but I am much better now. I am really happy to report that I bounced back much quicker than I normally...
Hi everyone! I'm writing to you from my blackberry at Kadlec Medical Center ICU. So I'm not really an ICU patient, they classify me as Intermediate Care but there were no beds available there so this is where I was placed. Anyway, I was admitted yesterday and...
2010! Looking forward to a New Year!!!!
Hi everyone! I can't believe it is already the 13th of January. It has been almost a month since I last posted (as my father pointed out this evening). I hope you all had a wonderful Christmas and New Year's filled with lots of love and happiness....
Day 90 - 3 Months Post-Transplant!
Day 90! WHOO HOO! I almost can't believe my 3 month mark is already here. What a crazy 3 months it has been too. So many changes.....some good, some bad, most difficult. Today is the milestone where they say I can now eat some of...
About.com Multiple Sclerosis
At long last, the results from the University of California at San Francisco study of low dose naltrexone (LDN) in patients with multiple sclerosis (MS) have been released. The data seem to point to the conclusion that LDN can help mental health of people with MS, but has little effect...
Exercise to Prevent MS Brain Damage?
A study recently came to light that suggests that aerobic fitness (aka exercise) can protect the brain from atrophy and lesions in people with multiple sclerosis. Put simply, the study showed that: People with MS who worked out more performed better on cognitive tests. Cognitive dysfunction is a very common symptom...
2009 Best Patient Blog Award Won by the Wheelchair Kamikaze
The winner of the 2009 Best Patient Blog award, The Wheelchair Kamikaze is described on the Epocrates website as: "the blog of a fearless Manhattanite with Multiple Sclerosis. Marc, the author, covers MS news and what life is like to live with the debilitating disease. However, this blog certainly isn't all...
What Do the Results of the “Buffalo CCSVI Study” Mean, Anyway?
From a "big picture" perspective of the role that chronic cerebrospinal venous insufficiency (CCSVI) plays in MS, I honestly don't know what the results mean. I don't think anyone else claims to know, either. In the most simple terms, here is what the data from the recent study conducted at the...
Q. Can Gingko Biloba Help My MS Symptoms?
A. I guess it's theoretically possible that the herb Gingko biloba might help the cognitive dysfunction that many people with multiple sclerosis experience as one of their most troubling MS symptoms. Personally, I never rule anything out, as long as it's safe and some people say that it has helped...
CCSVI and Multiple Sclerosis Coverage Compendium: Update
UPDATE: Whew! I have spent several hours going through all of the links that were sent to me and think I got most of them in one place. Scroll to the end of this blog to see the links that I retrieved from e-mails and read the comments section to...
MS Maze
Huffing: The Fatal Consequences of Ignorance
Children have been warned to “just say no to drugs” and told the dangers of illegal substance abuse, but more kids are getting high by huffing legal substances than by marijuana, cocaine, and hallucinogens combined. And they are often doing right in their own homes. The aerosol cleaner used to clean...
On Writing One of my favorite television shows of all time is The Dick Van Dyke Show. There is a particular episode that sprang to mind this week and, thanks to hulu.com, I was able to revisit it. The episode centered around Rob’s desire to fulfill his lifelong dream of completing a...
Health Care: Who’s Stalling, Who’s Making Preemptive Strikes, Who’s Paying the Price
The federal government may be having a hard time passing health care reform, but states aren’t wasting any time with efforts to block its effects. While President Obama takes health care reform back on the road again and Health and Human Services Secretary Kathleen Sebelius sends a warning to insurers that...
If you are steadily losing your ability to walk… to move… to remain independent… your tolerance for extended debate and controversy over a possible treatment, if not a cure, is put to the test. In this case, debate centers around “Liberation Treatment.” All around the world people with multiple sclerosis have...
Diagnosis, Denial, Due Diligence
So you’ve been diagnosed with multiple sclerosis. Now what? Denial. My own lasted only a few brief moments. The odyssey to diagnosis was a difficult one, and I quickly embraced the sweet relief of finally having an answer. But then it hit me I have MS… I have MS… I have MS…...
Reconciliation: What Does It Really Mean Anyway?
Reconciliation can sound like a dirty word, depending upon who is doing the speaking, but the process is nothing new and is certainly not out of the bounds of normal politics. Introduced in 1974, the process of reconciliation is used when Congress issues directives to legislate policy changes in mandatory spending...