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Top Muscular Dystrophy Blogs
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Muscular Dystrophy Association (MDA) - News
Thinking of College? Think Scholarships
Scholarships for students with disabilities are available from two organizations, but deadlines are fast approaching...
Elevators and Bathrooms at Your Fingertips
A free iPhone application helps shoppers find accessible routes, food, bathrooms in malls....
Artworks by Chesterfield Artist Accepted into MDA Art Collection
Two paintings by teenage artist Caroline Pennell of Chesterfield, Va., have been accepted into the Muscular Dystrophy Association's Art Collection. Now in its 18th year, the Collection features artwork by people from across the country with muscular dystrophy and related diseases....
Colorado Springs Airport Will Host MDA Art Exhibit
From January through March, the Colorado Springs Airport will display 15 selected works from the Muscular Dystrophy Association's Art Collection....
Attention Parents of Children with DMD, BMD, CMD and SMA
The National Task Force for the Early Identification of Childhood Neuromuscular Disorders is conducting a survey. We want to learn more about parents' first concerns about their child and how they described those concerns to their healthcare providers....
The new myMDA online group Trailblazers connects young adults ages 18 to 35 who are coping with muscle diseases....
News on biotechnology pharmaceutical from BioPortfolio.com
RBC Dain Rauscher:...
NewsRX:...
Endo Pharmaceuticals Announces Appointment of New Chief Operating Officer
Healthcare Sales & Marketing Network:...
Endo Pharmaceuticals Announces Appointment of New Chief Operating Officer
SmartBrief:...
BeaconEquity.com announces investment report featuring NexMed
News-Medical.Net:...
Research and Markets: Pharmaceuticals: Europe Industry Guide
PharmiWeb:...
Mark in Montana
A couple weeks ago we were given probably the hardest assignment of the semester in our photojournalism class. My mission whether or not I chose to accept it was to take thirty portraits of total strangers in a week.Needless to say I was a bit panic stricken at first...
I've been slacking with the blog lately but school has been keeping me busy. My friend Marsha brought this video to my attention and I just had to share. It speaks to the good of humanity and also the bad.These two women are heroes in the truest sense...
The Waiting Is The Hardest Part
Well the time has finally come for me to formally apply to the UM School of Journalism. My application has been submitted and hopefully I will receive the much awaited decision around the end of March. I feel pretty confident but you just never know about these things.I...
Here are a few of my shots from an assignment dealing with depth of field. Depth of field is a term that deals with how much of a picture is in sharp focus. I took the pool ball shot with a wide aperture and this gave me a...
I'm really getting into my photojournalism class and last week we worked on depth of field. It was fun to experiment with a few different types of shots and I felt things went well. The photos need to still be converted to jpeg but I'll put them up...
allowscriptaccess="always" allownetworking="all" allowfullscreen="true" src="http://cdn.abclocal.go.com/static/flash/embeddedPlayer/swf/otvEmLoader.swf?version=&station=wls§ion=&mediaId=6884067&cngdnRoot=http://cdn.abclocal.go.com&webRoot=http://abclocal.go.com&site=">When I began my pursuit of a journalism degree, I wondered how many others with disabilities had taken a similar path. Yes there are examples like my friend Scott in Florida who graduated from St. John's and there are high profile examples in people...
Life of John
Hope everyone has a very merry Christmas. This is always such a wonderful time of the year. The spirit of peace, goodwill, and giving to others is in the air. If only this spirit could last all the year. I get great pleasure in the giving to others. This year,...
Today I received some sad news. Josh Winheld, who I got acquainted with on the internet group, DMD Pioneers, lost his battle with Duchenne Muscular Dystrophy today. I didn't know Josh as well as others did, and chatted with him on the internet only a few times, but I did...
I hope all my readers in the United States had a great Thanksgiving. My Thanksgiving was spent at home with the family. The best part of this holiday is spending time with my family. It is also a time for reflection on things that I am thankful for. Here are...
Here is an amusing sign, which I found on the blog, A Stellar Life....
On Friday, October 2, I attended the annual air show at MCAS (Marine Corps Air Station) Miramar for the third year in a row. It was just as thrilling this time as the other times. There is always something exciting about the roar of jets overhead. As usual, the show...
On Saturday, September 12, I saw Dave Matthews Band in concert at Cricket Wireless Amphitheater in Chula Vista. I have been a big fan for years, but this was my first time to see them live in concert. My seats were very good. They gave me an unobstructed view of...
Muscular Dystrophy / ALS News From Medical News Today
Army Of New Care Advisors Joins The Fight Against Muscle Disease, UK
An army of 19 new and newly secured care advisors will be joining the fight against muscle disease across the UK with the Muscular Dystrophy Campaign......
Diary Note: East Of England Muscle Disease Conference
What Families living with muscle disease in the East of England are joining forces with clinicians and MPs at an inaugural conference for the region, organised by the Muscular Dystrophy Campaign. The conference will be an opportunity for families to learn more about fighting for better muscle disease services...
Is Prenatal Screening For Rare Diseases Like Spinal Muscular Atrophy Too Costly?
Spinal Muscular Atrophy (SMA) is one of many serious disorders for which prenatal testing is available. SMA affects approximately 1 in 10,000 live births and is the leading genetic cause of infant mortality and the second most common autosomal recessive disorder, after cystic fibrosis......
Diary Note: Nottingham Muscle Group Meeting, UK
What Families affected by muscle disease in Nottingham and the East Midlands are meeting to hear how care and services in their region will be improved. Speaking at the meeting will be Kate Caston and Christine Richardson from the East Midlands NHS Specialised Commissioning Group......
William Hague Lends Muscle To Yorkshire And Humber Muscle Group, UK
A group of campaigning muscle disease patients from Yorkshire and Humber are proud to announce the Rt. Hon. William Hague MP as their new patron. The Yorkshire and Humber Muscle Group asked Mr Hague, as MP for Richmond and a Rotherham-born local lad, to be patron of their organisation...
Sandra Gidley MP Flexes Political Muscle To Call For New Muscle Disease Care Advisor, UK
Sandra Gidley MP is backing the fight for better muscle disease healthcare in Hampshire by calling on NHS bosses to fund specialist staff. Last month the South Central Muscle Group, a patients' forum for families in the region living with muscular dystrophy, met in Southampton where MP for Romsey...
Wikio - Muscular Dystrophy
Trek of Great Wall for kids MD Campaign (Spaghetti Gazetti)
O n the 20th of March 2010 myself, Samantha Hill, and Scott Edwards, along with a team of 32 other volunteers will be trekking 80km of the Great Wall of China in aid of the Muscular Dystrophy Campaign. We will be walking for 8 hours a day over steep, uneven...
MDA hosts annual Lock-Up fundraiser (TimesDaily.com)
The Muscular Dystrophy Association will be incarcerating Shoals residents whose charges are "having a big heart."Source : TimesDaily.com (subscribe)Explore : Diseases, Health-Fitness...
Rooftop firefighters need help (Sherwood Park News)
Strathcona County Emergency Services firefighters need more help as soon as possible to reach their goal of $50,000 in donations for Muscular Dystrophy Canada. Camping out on the rooftop of Fire Station No.[...]Source : Sherwood Park News (subscribe)Explore : Diseases, Health-Fitness...
Pumped up for a cause (Sherwood Park News)
Strathcona County firefighters have spent their last few Saturdays pumping gas and cleaning windshields at the Safeway gas station on Wye Road to raise money for Muscular Dystrophy Canada. They will be back at the gas station this Saturday from 10 a.[...]Source : Sherwood Park News (subscribe)Explore : Health-Fitness,...
CureDuchenne to Host Inaugural Duchenne Muscular Dystrophy Summit (The Earth Times Online Newspaper)
CORONA DEL MAR, Calif. - Today, CureDuchenne, a nonprofit dedicated to raising funds and awareness for Duchenne Muscular Dystrophy (DMD), announced that on March 19, 2010 the organization’s scientific advisors from around the country will come together in the fight to find a cure for DSource : The Earth Times...
PTC's lead drug ataluren flunks PhIIb (Fiercebiotech)
PTC Therapeutics' lead drug ataluren failed a Phase IIb trial, flunking a test of its ability to improve the physical performance of patients with a rare genetic disorder. Genzyme is partnered on the program. Researchers tested the therapy in patients with nonsense mutation Duchenne/Becker Muscular Dystrophy. The primary endpoint--a change...
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